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September 11-14, 2025

1st In-Person Patient Meeting at CREER

Burgos

The first in-person AESCOV patient meeting at CREER was a complete success!

1st In-Person Patient Meeting at CREER - Foto 1

During these days of coexistence, our members had the opportunity to learn, connect, and share experiences in a warm and supportive environment. The event included workshops with CREER professionals, specialized talks, and leisure moments to enjoy the city of Burgos. Each activity gave us valuable lessons, not only in the medical field but also on a personal level, strengthening the bonds between participants.

This event became a unique space to recognize ourselves among peers, feel accompanied, and share experiences that, in many cases, only those of us who live with a rare disease can fully understand. Without a doubt, these moments of connection have given us new strength to continue fighting together.

We want to wholeheartedly thank all the people who made this meeting possible. To the CREER professionals, for their dedication and unconditional attention, from the psychologist to the photographer, including the cooks who, with each meal, gave us a gesture of affection. Thank you for the love and care you gave us.

We also want to thank the speakers who accepted the challenge of accompanying us and bet on patient empowerment as a key tool to improve our quality of life.

And, of course, to our members: thank you for your trust, for the effort of traveling to Burgos, and for the energy, attitude, and involvement you brought to each activity. Each of you is a constant source of inspiration.

Activities carried out during the event:

Watch the event summary video on our Instagram channel: watch video

1st In-Person Patient Meeting at CREER - Foto 2

This meeting has been a fundamental step in consolidating the AESCOV community. These have been days of strengthening, cohesion, and shared learning. Thank you for these days of connection, strength, and community!

1st In-Person Patient Meeting at CREER - Foto 3

Activities

  • Welcome and member gathering
  • Experience Exchange Workshop – Cristina Pérez
  • Associative Management Workshop – Marta Fonfría
  • Lecture: Patient Rights in the Public Health System – Amparo García
  • Lecture: Exploring Vascular Compression Syndromes: preliminary evidence and its connection to Ehlers-Danlos syndrome – Dr. Borja Mercado
  • Lecture: Philosophical-scientific aspects of pain and illness. What can stoicism contribute? Vascular Compression Syndromes. What's new regarding diagnosis and treatment? – Dr. Diego Caicedo
  • Online lecture: Vascular Compression Syndromes, Ehlers-Danlos Syndrome and Dysautonomia, more than coincidences – Eva Collado and Montserrat Sonsona
  • Polyvagal theory in Vascular Compression Syndromes – Natalia Pardo
  • Recording of resources for future awareness videos
  • Cultural visits: Historic Center of Burgos and Monastery of Las Huelgas

This meeting has been a fundamental step in consolidating the AESCOV community. These have been days of strengthening, cohesion, and shared learning. Thank you for these days of connection, strength, and community!